Resources

Exercise / Training

YUVEDO
https://www.yuvedo.de

The EPDA ExerciseCast
https://www.epda.eu.com/latest/resources/epda-exercisecast/

In April 2020, ahead of World Parkinson’s Day 2020, the EPDA launched our own online video exercise programme – the EPDA ExerciseCast. The programme started as a response to the lockdown situation created by the COVID-19 pandemic, which has forced millions of people – including people with Parkinson’s – to stay indoors in isolation.

BURN ALONG
burnalong.com

DANCE FOR PD
danceforparkinsons.org

DAVIS PHINNEY FOUNDATION PARKINSON’S EXERCISES ESSENTIALS VIDEO
davisphinneyfoundation.org/resources/parkinsons-exercise-essentials

Developed by the Davis Phinney Foundation, the Parkinson’s Exercise Essentials video provides a range of workouts designed specifically for people with Parkinson’s and is easily modified for any fitness level. Follow these activities at home, in a fitness center or out in the community.

PARKINSON’S UK EXERCISE RECOMMENDATIONS
parkinsons.org.uk/information-and-support/exercise

ROCK STEADY BOXING
rocksteadyboxing.org


Engagement

MICHAEL J. FOX FOUNDATION ADVOCACY TOOLKIT
michaeljfox.org/policy

NATIONAL INSTITUTES OF HEALTH SPENDING BY DISEASE CATEGORY
report.nih.gov/categorical_spending.aspx

ADVOCATING FOR PARKINSON’S IN THE UK
parkinsons.org.uk/get-involved/join-our-campaigns-network-today

CONNECT WITH A DAVIS PHINNEY FOUNDATION AMBASSADOR
davisphinneyfoundation.org/resources/ambassadors/

WORLD PARKINSON CONGRESS
worldpdcongress.org


Foundations

AMERICAN PARKINSON DISEASE ASSOCIATION
apdaparkinson.org

BRIAN GRANT FOUNDATION
briangrant.org

THE CURE PARKINSON’S TRUST
cureparkinsons.org.uk

DAVIS PHINNEY FOUNDATION
davisphinneyfoundation.org

DUTCH PARKINSON’S DISEASE ASSOCIATION
parkinson-vereniging.nl

EUROPEAN PARKINSON’S DISEASE ASSOCIATION
epda.eu.com

THE MICHAEL J. FOX FOUNDATION
michaeljfox.org

PARKINSON’S AUSTRALIA
parkinsons.org.au

PARKINSON’S FOUNDATION
parkinson.org

PARKINSON NET
parkinsonnet.info

PARKINSON’S UK
parkinsons.org.uk

SHAKE IT UP AUSTRALIA FOUNDATION
shakeitup.org.au

ADDITIONAL FOUNDATIONS AROUND THE WORLD
movementdisorders.org/MDS/Resources/Helpful-Links.htm


Education

Handouts for Patient Care
https://www.movementdisorders.org/MDS/Resources/Patient-Education.htm

The International Parkinson and Movement Disorder Society has compiled a series of downloadable patient handouts (as PDFs) on various movement disorder topics to be shared with patients. Handouts are available in over 30 languages covering an assortment of topics in movement disorders, with new ones being added regularly. Search by movement disorders topic or by language. To view as HTML webpages in English, click here.

AMERICAN PARKINSON DISEASE ASSOCIATION FITNESS TRAINING
apdaparkinson.org/pd-fitness-training

AMERICAN PARKINSON DISEASE ASSOCIATION PUBLICATIONS
apdaparkinson.org/resources-support/download-publications

EVERY VICTORY COUNTS MANUAL
davisphinneyfoundation.org/resources/every-victory-counts-2017

MICHAEL J. FOX FOUNDATION WEBINARS
michaeljfox.org/webinars

PARKINSON’S FOUNDATION WEBINARS
parkinson.org/expert-care/Professional-Education/Webinars

PARKINSON TV
parkinsontv.org

PARKYLIFE
parkylife.com

PARKINSON’S TREATMENT: 10 SECRETS TO A HAPPIER LIFE BY MICHAEL S. OKUNAvailable on Amazon and Barnes & Noble

PARKINSON’S FOUNDATION LIBRARY, PODCAST & WEBINARS
parkinson.org/library | parkinson.org/podcasts | parkinson.org/webinars


Training for Healthcare Professionals

PARKINSON’S ACADEMY
parkinsonsacademy.co

PARKINSON NET
parkinsonnet.info


Specialists

FLORIDA PARKINSON FOUNDATION CENTER OF EXCELLENCE
movementdisorders.ufhealth.org/for-patients/clinics/parkinsons-disease-center-of-excellence/

PARKINSON DISEASE CARE NEW YORK
pdcny.org

PARKINSON’S FOUNDATION CENTERS OF EXCELLENCE
parkinson.org/search

PARKINSON HEALTHCARE FINDER (NETHERLANDS)
parkinsonzorgzoeker.nl

PARKINSON’S DISEASE RESEARCH, EDUCATION AND CLINICAL CENTER AT THE U.S. DEPARTMENT OF VETERAN AFFAIRS
parkinsons.va.gov


Science

Moving Along publishes Early View articles in advance of publication
https://www.movementdisorders.org/MDS/News/Moving-Along-Early-View-Articles.htm

INTERNATIONAL PARKINSON AND MOVEMENT DISORDERS SOCIETY
movementdisorders.org/MDS.htm

PARKINSON’S FOUNDATION SCIENCE NEWS
parkinson.org/blog

SCIENCE OF PARKINSON’S BLOG
scienceofparkinsons.com


Studies

CLINICALTRIALS.GOV
clinicaltrials.gov

FOX INSIGHT
foxinsight.org

FOX TRIAL FINDER
foxtrialfinder.michaeljfox.org

MORRIS K. UDALL CENTERS OF EXCELLENCE
ninds.nih.gov/Current-Research/Focus-Research/Focus-Parkinsons-Disease/Udall-Centers

MPOWER SMARTPHONE APP
parkinsonmpower.org

PARKINSON NEXT (NETHERLANDS)
parkinsonnext.nl

PARKINSON’S UK RESEARCH HUB
parkinsons.org.uk/research/take-part-research

UNIVERSITY OF ROCHESTER NEUROLOGY STUDY INTEREST REGISTRY
redcap.urmc.rochester.edu/redcap/surveys/index.php?s=CwYikgxB8N

UNIVERSITY OF ROCHESTER PARK STUDY
parktest.net


Wichtige internationale Initiativen und Institutionen:

The Sergey Brin’s family project ASAP (Aligning Science across Parkinson’s):

The NIH’s Accelerating Medicines Partnership (AMP) for Parkinson’s:

https://fnih.org/what-we-do/programs/accelerating-medicines-partnership-parkinsons

The Linked Clinical Trials initiative (run by the Cure Parkinson’s Trust) where they have 16 compounds in 17 clinical trials for disease modification for PD:

https://www.cureparkinsons.org.uk/trial-ion-process

The Michael J Fox Foundation Fox insights:

https://www.michaeljfox.org/fox-insight

and their Parkinson’s Progression Markers Initiative (PPMI):

https://www.ppmi-info.org/

The International Parkinson Disease Genomics Consortium (IPDGC) group:

https://pdgenetics.org/

The Rostock International Parkinson’s Disease Study (ROPAD):

https://www.centogene.com/clinical-studies/global-patient-testing-programs-hl/rostock-international-parkinsons-disease-study.html

And the recently started Parkinson’s Foundation project in the US:

https://www.parkinson.org/PDGENEration

DZNE: https://www.dzne.de

Moreover there are also private/for-profit activities like:

BlueRock Therapeutics: https://bluerocktx.com,

DENALI Therapeutics: https://denalitherapeutics.com,

Neuralink: https://www.neuralink.com

Neuralink: https://www.neuralink.com


Have a resource to add to this list? Email info@endingPD.org.